Endo Issues TMI Sorry Guys need to vent bad

[destynnee.livejournal.com]

Hello and good day to all!
I visit here as often as I can, which is not much.. Umm.. I had my lap 8-31-05 for my Endo. The dr removed, burned, cut out all the could and all he wanted to. I have had the lupron shot which is to make up going into menopause, and was prev on depo prevera.. I am not now, becuase the dr I had said I should not keep taking it, and also because my partner left me.. (Ugh! Like its my fault I have health issues!)

Anyhow, its gotten where I am lucky to have a good day, let alone a good week so that I can work. It is only me supporting me, so if I don't work bills no get paid. I am in debit past my ears, and this week worked a total of 4 1/2hrs, at the place i work.. Which is a call center. I sit all day and take credit card applications..

But I have gotten to where I am bleeding so bad again, and am in sooooo much pain I can hardle get out of bed, and if I can, I can not be tied down because I have to pee like a race horse every 30mins it seems and the bleeding is so bad it just runs out of me like a faucet.. I need major help!!!

I am only 23 I should not be in so much pain that i can not work or have a life!!! The obgyn I prev had said he WILL not take anything out.. The meds are not working, my systoms are almost to where they were before the surgery.

I have lost someone i love greatly over this... I was just starting to get over some of my depression but am quickly falling back into a VERY BAD hole... I use to be a cutter, that is how I would ease my pains.. I do not want to start this back up again, but fear that I might seeing as NO pain meds I have been given work, UNLESS I overdoes by 1000mg's and chase it will liquir... Which I cant stand doing that, but I have in the past so I could at least get through a day of work.

So far the place I work for has actually been really cool about me leaving and just jumping up and running off of the call floor for what not reasons.. But I can not think they will let me keep this up for too long.. I will have worked there 3 years on 10-17-06... So I have been there a pretty good amount of time, and do my best to work as MUCH and as long as I can... Usualy working 9-10 hrs the days I work if i can, but I am only scheduled for 4 8.. 32hrs..

Deff not even to pay all the bills.... Why am I writing all this? And telling you all this... Because I need to vent.. No one understands this, i think sometimes no one cares, or they think i am making it up... Yeah like i can make up bleeding so bad it just runs out of you... yeah, whatever..

I need to find a dr who will remove it all. I can no longer carry around a backpack full of overnight pads and fear going out in public and having a life because of this... People dont know it, but this diseas is a killer.. Of the person, soul... And mine can take no more. i really need to know what dr's in the oregon area hopefully portland since i do not drive because my pains get so bad i jump and jerk alot, and do not use mass trans because my bleeding gets so bad a hour drive can mean ruined clothes.... If any of you know of any drs or possible ones who would just remove it all please let me know, I am going to speak to my new general dr on 1-4-05 to see if she knows of any. I can not keep this up any more!!

Sorry I just really need to vent today!

Ps I have had Endo since I was 12, and have been bleeding everyday since I first started.

Comments

[http://users.livejournal.com/_last_serenade_/]

:( i'm so so sorry to hear your organs are giving you such trouble. it sounds very frustrating. /huge internet hugs.

i'd like to suggest you ask a doctor about a mirena? it's an IUD, but the majority of women cease having periods after their first year on it, and i read a study of women who were waiting for hysterectomies and were given a mirena, and something like 80% of them actually cancelled their hysterectomy b/c they did so much better on the mirena. it's not a sure bet, but it's worth looking into.

as for a doctor who will not respect your choices, do not accept that. write them a letter and copy the board of health in your state and let them know that they are marginalizing you. if you have legitimate health problems that are not being solved by medication/methods prescribed by your doctor, they should be do everything within their power to fix it. especially if you have indicated that you WANT a hysterectomy, it seems you have every right to demand one.

i had to go to 4 different doctors before i got my IUD (i left 3 offices crying and humiliated) and all i can tell you is, don't give up...call the offices before hand and explain your situation, and DEMAND an answer over the phone. you should not have to take time off work to go into an office for an exam, only to be told no. tell them that you have made up your mind and it's not going to change. doctors will try and make you feel like shit for making your own choices, but this IS YOUR BODY. keep looking and you WILL find a doctor who respects that. it is not easy, but it IS worth it.

/more hugs

[mistress-yuna.livejournal.com]

Hey can I ask you what an IUD or a mirena is?

IUD info

[http://users.livejournal.com/_last_serenade_/]

http://health.yahoo.com/centers/women/00019000

that is an EXCELLENT source for information on IUDs.

i got one in september and i dig it.

[deepfire.livejournal.com]

Watch yourself really carefully with the IUD. I had one and it got infected, and it wasn't due to anything I could control. I was in agony for several months before some one figured out what it was and by then it had adhered itself to the tissues. One of the adhesions attached itself to my colon and caused even more problems. It was a mess for a good long time, and I still have issues now and again from it. Not saying don't do it, just saying be super careful.

Another thing that is working really well for me is the Nuva Ring. My periods have decreased from 9-12+ days a month with HEAVY bleeding almost contantly through it and spotting in between to 3-4 days a month, maybe 1 heavy day on a really bad month, if I don't replace one ring with another for a couple months (which the doc said wasn't a problem until I started spotting, then I had to leave it out for a week). I almost never cramp now and I had cramps that would lay me out for at least 3 or more days. It's something that is definitely worth looking into if for some reason you can't tolerate the IUD.

[autumn-sylver.livejournal.com]

There's also a birth control pill called Seasonale, that gives you only 4 periods a year.

[deepfire.livejournal.com]

There is, I was on it and it worked pretty well, but sadly my insurance doesn't cover it, it's too new on the market here :( Of course if I'd been able to take that I would never have found out about the Nuva Ring...Seasonale took a while before I stopped spotting and stuff. Nuva Ring I stopped as soon as I put it in.

[http://users.livejournal.com/_last_serenade_/]

to be fair, it's EXTREMELY rare to get infections from the IUD and typically has more to do with the insertion method/doctor than your tolerance for an IUD. i'm sorry you had to go through that...no fun. :( and i agree, for anyone with an IUD, get thee to a doctor at the first sign of any kind of infection or anything out of the ordinary.

[destynnee.livejournal.com]

i have done reg pills, the patch, nuva ring, and depo preva and am on lupron.. lupron is suppose to put me into menopause.. none of them worked.. and my insruance sucks big time.. they will only pay 55$ no matter what it is and will not pay for my lap surgery... I will though demand to know a answer when i contact new drs.. i deserve that... i should not have to take time off.. which i usualy do... and thanks for the info :)